Hello Jeremy. I am another mentor here on Connect, have been interested in your journey and must say you impress the heck out of me. You have climbed on board the self advocacy train and done a remarkable job for yourself. I cannot improve on any help my fellow Mentors have done for you but I would like to offer you some hope. Sixteen years ago this coming October I was given a cancer diagnosis. At that time, with available treatment, there was an expected 3-5 year life expectancy. I signed on for all that was available. As years progressed, there was enormous research progress for blood cancers. Today I am in full remission. I know there is a good chance my particular cancer will return as there is no cure, but I also know that already there is a list of new treatments that will be available to me with more coming out the pipeline. Next year I will be 80 years old with no plan to slow down more than age has asked for. So continue to keep informed, do what is needed, then live life as you want and can while that is happening. If you see a turn in the road, put on your signal, check the map, and plan the next stretch of road. Then kick back again and enjoy the ride. This cancer can't take anything from you that you don't give it, and certainly doesn't have to define you. Carry on and continue to lean on the friends you have found here on Connect. They won't walk away.
Peace, Nancy