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Temperature intolerance and sensitivity - Autonomic Neuropathy?
Neuropathy | Last Active: Sep 15, 2022 | Replies (48)Comment receiving replies
@stefspad Without knowing I was deficient, I was slowly increasing in exhaustion, heat sensitivity, heavy breathing and heart palpitations. I would get out of breath walking up stairs and have to stop midway to catch my breath while my heart was racing. Any simple activity such as basic yard work, making beds, making lunch was exhausting me to the point where I'd essentially collapse on the floor or couch as if I'd run a marathon. Bending over to pull weeds in the heat made me red faced and I'd get intense pressure in my head and migraines increased.
Once deficiency was discovered via methylmelonic blood testing (while going through SFN workup), I began B12 injections every 2 weeks then was rechecked every 60-90 days until my numbers were back to normal. After 6 months or so I stopped injections and switched to oral B12 supplements. My B12 got down to 219. Normal range falls between 200-900. Each lab can vary on numbers and 219 was enough to do damage. My Neurologist claimed this to be my underlying cause of Small Fiber Neuropathy.
I caution anyone to please be aware of signs in your body, listen and report to your Dr. immediately. Also, in my opinion B12 should be monitored regularly in everyone regardless of not having symptoms as it can permanently destroy nerves and leave you disabled.
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I also have Small Fiber Neuropathy and have had severe B12 Deficiency in 2000 of 71 (normal is 200-900 but my Neurologist at University of Michigan told me he likes for it to be over 500). When my B12 was 71, I couldn’t stand without holding onto something. I would sway back and forth. I was so weak I had difficulty pushing a grocery cart. I started out with B12 injections to get my level up to 200, and then had monthly injections for years. When I saw my Neurologist at U of MI in 2011, he wanted me to stop the B12 injections and switch to 1,000 mcg over the counter oral B12. I used Cyclocobalamin B12 tablets at first until I read that the Methylcobalamin B12 tablets are more easily absorbed. I use Nature’s Truth Brand 1,000 mcg Sublingual Tablets - one daily. They are available online. My B12 level is 2,000 now which my Neurologist is okay with - excess B12 is flushed from your body by the kidneys. I have permanent nerve damage in my arms and legs from when my B12 was only 71. I am the one that asked to be tested for B12 deficiency because my Mom had Pernicious Anemia with B12 deficiency in her mid 30’s and had B12 monthly injections for it for life, so I was aware of the symptoms for it. The nerve damage is from probably have very low levels for too
long. In 2,000 a B12 level of 200 was considered a normal level (now they know it needs to be at least 500 to help prevent nerve damage).