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Temperature intolerance and sensitivity - Autonomic Neuropathy?
Neuropathy | Last Active: Sep 15, 2022 | Replies (48)Comment receiving replies
@rwinney I had a strange day today. It got up to 90 today, which is pretty hot for central Oregon. As usual I was working outside, weeding and mowing, and I had to stop every 5 minutes or so to drink water. After an hour I had to go into the house and lie down for 30 minutes. I felt close to passing out, probably from the heat. This is new for me, and your making a connection with AN makes me wonder if that could explain my reaction to heat.
I also noticed that I wasn't sweating much, even though I was really hot.
I started taking Prednisone yesterday and wonder if there's a connection. The neurologist is having me try it long term at a low dose to slow the progression of neuropathy. I reported several new symptoms and increases in symptoms since my last appointment with him. I think he was concerned about the rapid progression.
I guess the learning curve is unending.
Jim
Replies to "@rwinney I had a strange day today. It got up to 90 today, which is pretty..."
Regarding prednisone I developed prednisone withdrawal syndrome, adrenal insufficiency, pituitary insufficiency and post steroid Cushing syndrome with all tve worst side effects. Hope your dr told you about them
@jimhd Thanks for your input Jim and good luck with narrowing down your source.
Hi @jimhd as a result of a ruptured AVM I also have neuropathy. I get overheated frequently and believe it is from my damaged nerves. They cannot sense body temperature as well. I often do tasks and take breaks in between. I do not stay outdoors longer than 15 minutes at a time when it gets hot. I live in Florida so I spend more time outdoors in the winters. The cooler temperatures are easier on me but I enjoy Florida’s climate all year long. I hope this helps. Unlike you, I do not have a progression and therefore do not take any medications because for my condition I refuse. I rather not deal with any additional health issues from potential side effects. The medications simply do not offer a cure. I find many of the medical staff has no answers so I rely on myself to research and learn by trial and error. Who would know my body better than me?
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Sweating is small fibers neuropathy. With passing - you should check your pulse and heart rate. if it's vasovagal syncope - then yes its autonomic neuropathy.