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StephanieT (@slturley)

Benign Cramp Fasciculation Syndrome

Brain & Nervous System | Last Active: 4 days ago | Replies (12)

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@terryl62

I believe I have cramp-fasciculation syndrome since my colon resection surgery in May 2019. I have muscle twitching primarily in my legs, but all over at times, along with severe leg pain. I initially thought it was from anxiety so I went to a psychiatrist in Louisiana and was able to get on Clonazepam, which helped me previously with intense pain from cervical spine surgery. It turned out that it worked as well for my new pain. Its the only thing that has been tried and true for me through everything. For my neck pain I was able to wean myself off after several months and was fine until the cancer surgery. Now I moved back home to Oklahoma and cannot find anyone to prescribe it and the pain is so severe again. Have taken everything for pain for14 years and every antidepressant in the world and have seen every type of doctor and every test. Next is to a neurologist but if I can't get clonazepam, not hopeful anything else will help. It was a lifesaver for me and only needed .25 mg a day.

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Replies to "I believe I have cramp-fasciculation syndrome since my colon resection surgery in May 2019. I have..."

@terryl62
Wow you have been through the mill! Cervical spine surgery, colon resection surgery and cancer surgery, that is a lot! But the only thing that has given you significant relief (Clonazepam) was obtained from a psychiatrist, and now that you are back in Oklahoma you can't get any more of it? Who have you seen about getting it and what was their justification for not prescribing more of it for you? Best, Hank