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HER2 positive & HER2 negative: I have both at the same time
Breast Cancer | Last Active: Jun 12, 2023 | Replies (39)Comment receiving replies
Originally diagnosed with HR+ER + HER2 negative in 2015. Surgeries/chemo/radiation then declared NED. Reoccurrence in September 2019 but this time HER2 positive. I started Herceptin/Perjeta. In January 2020 new cancer was detected but this time HER2 positive and so we added Ibrance and Faslodex. The HER2+ is responding but the HER2 negative is progressing. I am awaiting results of a Foundation 1 test now. Working with local oncologist and oncologist from Duke.
Replies to "Originally diagnosed with HR+ER + HER2 negative in 2015. Surgeries/chemo/radiation then declared NED. Reoccurrence in September..."
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@rraw
Thankfully, you have access to Duke University Medical Center which has excellent providers to recommend appropriate treatments. I remember being told that, although I was HER2+ when first diagnosed, any recurrence could be positive or negative. I didn't envision your situation, however. Although I'm absolutely no help, you have taught me something new... which is one of the purposes of this forum, I guess, and for that I thank you.