← Return to Ruptured AVM: Has anyone dealt with photophobia?

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@avmcbellar

@rwinney it was nice hearing from you. Sounds like you have been through a lot yourself regarding the health of your eyes. Glad your transplanted cells will be good more than 10 years. I am sure you took proper care of your eyes giving them good nutrition. Do you have to do the surgery again after 10 years? What caused your double vision? I know with mine the nerves controlling the eye muscles responsible for looking inward and downward did not work well. The muscle is too weak on one eye; therefore, each eye has a different image creating the double vision. In the beginning, as recommended through my research, I did eye muscle strengthening exercises to correct my double vision. I believe it helped slowly over time. My doctors provided little information, only to give it time. I was told I could either wear an eye patch or just leave the eye alone. It may correct on its own. I tried the patch for about a month but it bothered me when I took it off. The eye image that had the patch was much darker. So I decided to stop the patch and concluded how would my bad eye know to adjust itself when it is not being used. I placed frosty tape on my glasses which allowed light in and at the same time stopped the double vision. It worked well for a while, plus I did my eye exercises. A few months later I slowly started to develop photophobia. Next, I recently went for an eye exam and learned about the surgical procedure for the optical torsion since a prism offered no relief. My eyes now had settled to make that determination.
I have a friend who told me about the eye therapy. For her it has helped along with the prism. All cases are different. I am glad some people can find a solution. I believe it takes research along with trial and error. She is a believer like me. We contact each other to see what works or doesn’t work and feed each other information through our experiences.
Wearing the mask for dilation is a great idea. There are many good uses for the mask. Another is the dentist office as you mentioned. I am looking forward to my glasses. They come with the sun visor clip ons. I hope to get some relief at least until I decide on the surgery. Thanks again for your input.

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Replies to "@rwinney it was nice hearing from you. Sounds like you have been through a lot yourself..."

@avmcbellar My double vision came from developing secondary cataracts a few years after my original cataract surgeries. It was overlooked by 2 Drs which is why I was treated along the lines of how you've been dealing with your double vision....prism stickers, eye excercises. Mine ended up being fixed by laser surgery in each eye. Yes, I most likely will need round 2 of cornea transplants as the healthy cells slowly die off from Fuchs Dystrophy. I was only 43 when I had the surgery...now 50 so, I've got a ways to go with these eyeballs. I do try to eat healthy for my eyes, migraines and small fiber neuropathy. I've always felt like I've been a bit doomed neurologically as all my problems seem interconnected with hyper sensitivity. It's awesome that you are so proactive and a great advocate for both yourself and your mom! Keep up the good work and thank you reaching back out. I'd like to hear how you do with your new glasses.
Rachel