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Autoimmune Diseases | Last Active: Jun 22, 2020 | Replies (8)
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Replies to "@januaryjane- It's nice to meet you. Were you born in January? :) Erythromelalgia is a very..."
Yes, its been fun looking at all the sales! For awhile I had unexplained hand burning and redness, also my ears, just minor. About 2 years ago my face started to have these flares. I was worked up for lupus and other autoimmune disorders, nothing panned out. It just got worse, affecting my ears, face, hands and feet. I was doing research and found Erythromelalgia. Everything was spot on. I havent been diagnosed, I havent even talked with a Dr. about it yet. I was just finding out and none of these specialists brought it up. So anyway, it may or may not be it. But it is definately something. These parts of my body swell, burn, turn red, are hot, if they have too much sun or environment gets too warm. Also, caffeine, tiredness, or stress can activate them. Meds are not different. Sunscreen is not helpful for this. It eventually calms down with rest, elevation and cooling. Believe me, i used to use tanning beds, or just outside, this is abnormal. I am seeing a new Rheumatologist next month, so hoping to talk to him about this. Not sure if he specializes in this, but I know of another Dr. that supposedly does, hes a dermatologist. So I hope to get to someone whois helpful!