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Do you have pre-seizure issues or symptoms?

Epilepsy & Seizures | Last Active: Mar 20, 2021 | Replies (39)

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@jakedduck1

@cdupont1234
I’ve never heard of anyone improving their seizure control by using protein but anything is possible. Everyone is different. There is the man in Canada who has 100% control of his seizures by using B vitamins. Vitamin B6 deficiency is the only vitamin deficiency known to cause seizures. Low sodium, magnesium & calcium are also causes.
I would be more concerned about what you were doing around the time you had these seizures than the particular time frame except the time of day. For example were you stressed, poor quality sleep, If your photosensitive flashing, blinking, flickering lights (tv, theaters, video games, computers, lights in stores/offices even patterns (straps, checkerboard etc.) if you have a reflex epilepsy reading a book can cause a seizure. Musicogenic epilepsy is also a reflex epilepsy. I have a friend in England who has it and he has a key here every time he plays his banjo. Menstruation (catamenial epilepsy), stress, alcohol, medications, illicit drugs, fever, infection. Even food or drinks, excessive caffeine. Granted a number of what I listed are rare but who’s to say who will have rare reaction.
You mentioned you take
“Elequis to prevent blood clots if seizures occur.”
That seems like a mighty big “if” to me. Whats the relationship between blood clots and seizures?
Do you have a history of clots? I’d love to know your doctors reasoning for prescribing blood thinning medication to someone based solely on a seizure diagnosis and especially a seizure every 6 months. Certainly new to me. I wouldn’t take it.
I also have a problem with Trilepital. Probably not justified but I would take other meds first although I know of quite a few people who have good results with it. But it has been known to increase seizures in some usually children I believe and is suspected to increase them in some adults too.
You mentioned the limit drink sugar. How about artificial sweeteners? Although artificial sweeteners haven’t been proven to cause seizures I know many people who claim aspartame causes seizures for them. My drivers license is too important to me to risk losing it by taking the medication or artificial sweeteners regardless of how small the risk.
You might wanna consider keeping a seizure diary/log/journal or whatever you choose to call it. It could end up being very beneficial to you and your Neurologist.
Hope you find the answer to stop the seizures,
Jake

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Replies to "@cdupont1234 I’ve never heard of anyone improving their seizure control by using protein but anything is..."

I had not heard that about a vitamin B6 deficiency. My daughter has suggested the Vitamin B deficiency idea. That would be worth a try. No risk in trying it. No artificial sweeteners in my diet. i was just sleeping in my lazyboy chair or sleeping at night when the seizures occurred every 60 days.