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Do you have pre-seizure issues or symptoms?

Epilepsy & Seizures | Last Active: Mar 20, 2021 | Replies (39)

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@maggiek

My seizures started when I was in my 20s. Had a grand mal seizures while camping with my family. No warnings of any kind prior to that event. And I can’t think of any symptoms before that. At the time I was taken by ambulance to the local hospital and from there to the city. A brain tumour was suspected. After tests I was diagnosed with temporal lobe epilepsy. My auras I call them start with an ominous over whelming feeling in my stomach that just moves up and feels like I am going to vomit. Suffocating. As I age the feelings Have come in clusters I call them and all I can say when they start is please please not again. It is the most overwhelming feeling. I’m now 72 and over the years I ve only had a few seizures that just stop everything , no warning. and I pass out. But most of the time there is that awful feeling. Until medication was finally adjusted I had a lot of petit mal and as well deja vu. Everything stops, even sound. And I remember thinking...I’ve been here I’ve done this before. I believe that over the years due to not checking my blood levels Often enough my meds would become untherapeutic. When the dosages were adjusted things straightenEd out. I believe too that stress at times has been involved. I am a stubborn independent person and will fight thru anything, perhaps at times I should have addressed that...stepped back from Some things. Just not my nature and I’m too old to change now.
Maggie

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Replies to "My seizures started when I was in my 20s. Had a grand mal seizures while camping..."

@maggiek
When you have epilepsy you can never be too old to change. Change is essential sometimes. Saying that you’re too old to change is like saying you give up and that frightens me. Seizures can get better they can get worse they can change types and change frequency and severity. We have no choice but to change. SAFETY FIRST. Now you better behave yourself!!! and change whenever it’s necessary, GOT IT?
You take good care of yourself and if you have to change then that’s what you do regardless of age!
Jake

Hello @maggiek, I'm in agreement with @jakedduck1, it is possible to change if you need to change. Self-care is the most important activity to be involved with right now. Do what is best for yourself, if changing is hard for you, have you considered seeking the help of a therapist who can help you move from being (as you said) "stubborn independent person" to a more tolerant person who is willing and able to change?

This might be something to consider. Will you think about it?