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Two bits of good news!! (and nebulizing with saline)
MAC & Bronchiectasis | Last Active: Jun 3 10:16am | Replies (102)Comment receiving replies
Hi, Sue !! Thank you so much for your response. I'm sorry I had missed it but was just reading through posts and came across it. Well, I didn't think it was the same after reading so much about nebulizing from the posts on this site. So, I'm not comfortable with his dismissiveness. His take was, tho, that the albuterol which is my bornchdilator is the same as what is nebulized.... and as I'm writing this, duh !!! of course it isn't !!!
As for the tinnitus, is the Clrithromycin as effective as the Azithromycin?? Some days it isn't bothersome, others it is. Like today !
I live in Virginia Beach, Virginia. I've thought about reaching out to University of North Carolina. I believe that is the university that has a good program for Bronch/MAC. So, do alot of you travel to National Jewish Health or a Mayo Clinic??
I have 6 more months to go on the Big 3. That will give me 2 years on these meds.
I really do appreciate all the advice and sharing from y'all on this site. It's helped give me a lot of comfort and realization that there's a lot more of this affliction out there than anyone would every know. It's amazing to me! Until one is diagnosed, who ever hears of this!
Thank you, Sue !!!
Toni
Replies to "Hi, Sue !! Thank you so much for your response. I'm sorry I had missed it..."
Hello Toni. It sounds like your dr is somewhat lack-a-daisical. Perhaps he is not current with methods on treating mac. If you are interested in going to Mayo Clinic in Florida, it is a 9 1/2 hr drive for you. I have a neighbor with an AirB&B room in a covid free house if you need a stop-over.
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@toni1132 Toni - Yes, I do believe there are good MAC clinicians in your area. Knowing you are in Virginia Beach helps, maybe someone can reach out to you with a suggestion, or maybe you could call Mayo or NJH for a recommendation. While some of us do travel to Mayo or NJH, many have found effective docs near home. My own ID doc in Minnesota works in concert with my pulmonologist and primary in a large group practice. He has reached out to NJH for confirmation when adjusting my treatments.
As for the question of hearing and clarithromycin vs azithromycin, they are the same family of meds, and I believe they have the same risks. However, some people tolerate one better then the other. As I sit here typing this, my ears are buzzing even after 7 months off the meds - but the tinnitus is either getting better most days, or I just don't notice it as much.
Sue