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Two bits of good news!! (and nebulizing with saline)

MAC & Bronchiectasis | Last Active: Jun 3 10:16am | Replies (102)
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@sueinmn

@toni1132 Hi Toni - Hmm...no a rescue inhaler is not at all the same as nebulizing saline. It is meant as a bronchdilator for airway constriction, does not either encourage or thin mucus. My ID doc didn't prescribe nebulized saline, though he did encourage it, mainly because he didn't want to cross over into the pulmonologitst's territroy.
As for tinnitus from azithromycin, refer him to https://www.rxlist.com/zithromax-side-effects-drug-center.htm
In your situation, if possible, I would be seeking someone with more experience treating MAC & bronchiectasis, who is willing to consider information you bring to him, and not just dismiss it. After a little conflict with my original pulmonologist, he fired me! With the help of my primary & ID docs, I found a new one, and she's a keeper.
Are comfortable sharing your general location? You may get helpful recommendations from this group - while National Jewish Health and Mayo are kind of the "gold standard" for treating MAC, many of us have found great docs in our communities.
Sue

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Replies to "@toni1132 Hi Toni - Hmm...no a rescue inhaler is not at all the same as nebulizing..."
toni1132 | @toni1132 | Jul 10, 2020

Hi, Sue !! Thank you so much for your response. I'm sorry I had missed it but was just reading through posts and came across it. Well, I didn't think it was the same after reading so much about nebulizing from the posts on this site. So, I'm not comfortable with his dismissiveness. His take was, tho, that the albuterol which is my bornchdilator is the same as what is nebulized.... and as I'm writing this, duh !!! of course it isn't !!!
As for the tinnitus, is the Clrithromycin as effective as the Azithromycin?? Some days it isn't bothersome, others it is. Like today !
I live in Virginia Beach, Virginia. I've thought about reaching out to University of North Carolina. I believe that is the university that has a good program for Bronch/MAC. So, do alot of you travel to National Jewish Health or a Mayo Clinic??
I have 6 more months to go on the Big 3. That will give me 2 years on these meds.
I really do appreciate all the advice and sharing from y'all on this site. It's helped give me a lot of comfort and realization that there's a lot more of this affliction out there than anyone would every know. It's amazing to me! Until one is diagnosed, who ever hears of this!
Thank you, Sue !!!
Toni

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