Connect
← Return to PMR: Are there treatment alternatives to Prednisone?
Discussion
PMR: Are there treatment alternatives to Prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Jan 11 7:08am | Replies (175)Comment receiving replies
I am new to this mayo clinic group but I’ve had PMR for five years. I am 67 years old and every nine months I would come off the prednisone and then it would come back within 6 to 8 weeks
Then I would start the whole prednisone thing again for another nine months off a couple of months and then it would return
My doctor had me try low-dose naltrexone
I have it compounded and I have been off prednisone and in remission for 7 Months
I take 4.5 LDN daily and drink celery juice 3 to 4 times a week when I can find it organic.
I don’t know if this is something you would like to consider but do some research on the LDN
Replies to "I am new to this mayo clinic group but I’ve had PMR for five years. I..."
I will definitely ask my Dr. about this low dose naltrexone but I will pass on the celery juice/ Have you had ANY side effects to the LDN?
Organic celery, lettuce, carrots plus other greens are better than just celery. Celery has a high percentage of salt.
Please tell me more. I was just diagnosed. My Dr says prednisone is the only thing he prescribes. But I know coming off of it only causes a rebound and taking it does all kinds of awful stuff to the body. I just DO NOT want to take it. Tell me more about the alternative Ned you are taking, please. It’s the Naltrexzone I’m curious about. Does it have bad side effects? Would love to chat with you about this. I am sooooo in pain and unable to do hardly anything and that is NOT me. Thank you for a reply. Kathy
Thanks for sharing. I will definitely ask my doctor. I was diagnosed 3 months ago, but pretty sure I had it much longer. I just thought it was my RA flaring up, which I also have as well as osteo arthritis. Each one requires different exercises so am still trying to figure out what I can do that doesn't have a reaction to any of them. So far, it seems swimming is the best, but have to still be careful not to do too much. Started on 20MG prednisone, 2 months later reduced to 17.5. Not helping as much but trying not to go back up to 20. Pain in the mornings is really bad.
Connect
Thank you! I'm open to all possibilities!