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asquires (@asquires)

Wounds that take a long time to heal. Why?

Autoimmune Diseases | Last Active: Jul 12, 2020 | Replies (22)

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@maryz

I suggest a really good Dermatologist. They have treated Lichen Planus for a very long time! I have Errosive Oral Lichen Planus. However, in the past 4 years I have also developed Lichen Planus on my skin. It is distressing as brown spots appear. I have been treated with a topical (low dose) Prednison or if your lucky one of the non steroid topicals may work or help. I recommend seeing a dermatologist who trained in a well know Hospital preferably in one with a large diverse population. Some of my brown patches have gone away most have not. Before I started researching the Dr's training I had some (unusual) treatments, too many biopsies and diagnosis. I wish you good health! My spots have not gone away, I have found that once I had the diagnosis and understood that there is really no cure, but there is some relief I have had to adjust. I try to keep a positive attitude by working out, walking, eating well and being grateful the oral pain only flares once in a while. I know how frustrating it is. I hope you find some help!

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Replies to "I suggest a really good Dermatologist. They have treated Lichen Planus for a very long time!..."

I was so surprised to find your mention of oral lichen planus on this blog and not the lichen planus blog. That blog was my first connection with anyone who has it. Most people and even doctors have never heard of it. I got it in 2002 after taking Prilosec for a month. I was not given any treatment by dermatologist but my dentist suggested things for my mouth. My mouth burned constantly. Tissue inflamed and painful. I meditated are natural food and exercises. It went into remission and little patches would appear and then quiet down. I had cataract surgery on both eyes and from taking the eye drops it flared in my mouth with brown spots all over face and a few others here and there. I just saw an oral surgeon who gave me a prescription for lidex gelato help my gums. I am hoping I can put it into remission again. Please post your information on the lichen planes blog. There are so few of us. Wishing you well