I suggest a really good Dermatologist. They have treated Lichen Planus for a very long time! I have Errosive Oral Lichen Planus. However, in the past 4 years I have also developed Lichen Planus on my skin. It is distressing as brown spots appear. I have been treated with a topical (low dose) Prednison or if your lucky one of the non steroid topicals may work or help. I recommend seeing a dermatologist who trained in a well know Hospital preferably in one with a large diverse population. Some of my brown patches have gone away most have not. Before I started researching the Dr's training I had some (unusual) treatments, too many biopsies and diagnosis. I wish you good health! My spots have not gone away, I have found that once I had the diagnosis and understood that there is really no cure, but there is some relief I have had to adjust. I try to keep a positive attitude by working out, walking, eating well and being grateful the oral pain only flares once in a while. I know how frustrating it is. I hope you find some help!