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Neuropathy in feet and limited toe movement?
Neuropathy | Last Active: May 27 3:51pm | Replies (151)Comment receiving replies
@mjpm2406 @jesfactsmon Hi concur with Hank, that I have never heard of all the tests for Neuropathy that you have described, and I am so sorry also, for your rare blood cancer. All of us here know how bad Neuropathy can make a person feel. Please do get back to use once you learn more. I hope you have something to help manage your neuropathy. I know there is not much that works. My best to you, Lori Renee
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The neuropathy panel is performed by Invitae. Go to Invitae.com to look at the various panels. My neurologist ordered the panel based on my family history and her exam. It's a zimpkd saliva test. She suspected SMA so she added that to the panel along with MS, ALS, and Parkinson's just to "rule them out". My insurance carrier covered the cost of the neuropathy panel. I now have an appointment with my Neurologist on Monday to go over the results and talk about a treatment plan. My neurologist wants to chat with my oncologist first because he wants to coordinate a treatment plan with the Leukemia Group at Sloan because he doesn't know anything about MDS/MPN-RS-T.