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Neuropathy in feet and limited toe movement?
Neuropathy | Last Active: May 27 3:51pm | Replies (151)Comment receiving replies
@mjpm2406 you lost me in the alphabet soup, but I like your spirit, as well as your can do attitude to even get this done. I have not heard prior to this of anyone doing having this type of testing done for neuropathy but it sounds very interesting to be able to pinpoint the genetic markers for this type of illness. Thanks for the post! Hope you follow it up after you learn more. Best, Hank
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I went to Weill Cornell in Manhattan with my two daughters for genetic testing because of our family history of PN. My daughters wanted to know if they also have the same gene mutations as I do. We were given EMGs and needle EMGs. My results indicated severe neuropathy. My daughters tested normal (so happy). They also ran exome sequencing and whole exome tests. These tests look at 20,000 genes in your body and test for the proteins generated by those genes. Results should be back in mid-January. No final diagnosis from Cornell because they want to see the results of the exome tests.
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@mjpm2406 @jesfactsmon Hi concur with Hank, that I have never heard of all the tests for Neuropathy that you have described, and I am so sorry also, for your rare blood cancer. All of us here know how bad Neuropathy can make a person feel. Please do get back to use once you learn more. I hope you have something to help manage your neuropathy. I know there is not much that works. My best to you, Lori Renee