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Neuropathy in feet and limited toe movement?

Neuropathy | Last Active: May 27 3:51pm | Replies (151)

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@summertime4

@kscott42 Thank you. Face book is a good idea. I have had many questions answered from people on face book and they are sincere also as to wanting to help. I may have friends that have neuropathy and have similiar issues and they may live right around the corner. I have a very nice group of face book friends so I am not afraid to ask some questions. In fact I heard that my neighbor a few houses down was recently diagnosed with neuropathy. If nothing else I can tell her about this group. Thank you.

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@summertime4 @lorirenee1 @phoenix0509 @johnbishop

I'm sorry, David, that you're now on the pain management track. Join the team. I don't have much support from people other than Mayo Connect, my therapist (and I think he gets tired of hearing the same story every week), and various doctors. I know my wife cares, but she is dealing with some significant pain herself, so I try to limit how much I say about mine. The same thing is true for depression and other challenges I face long term.

David, @phoenix0509 I will be having surgery for serious spinal stenosis at the lumbar/sacral connection. The neurosurgeon said that it's quite possible that surgery will reduce my pain in my feet and ankles. But she said that we wouldn't know until after surgery. I went to her with the intention to discuss a DRG stimulator implant, but she said that the stenosis is a problem that should be addressed first. All 5 of my siblings have had back surgery, and I thought I'd escaped. I'm a bit dismayed to hear your outcome.

Right now, sitting in my recliner after a fairly easy day, my feet and ankles are hurting almost as much as ever. It's gradually making its way up my legs. By the time it reaches my knees, it's usually not as bad. In the 7 years since my last nerve conduction test, I've moved from normal motor and sensory results to 50% reduction, according to the tests I had done yesterday.

So, how long, and how far can we go, trying things that are actually kind of silly, hopeful for some relief that will last longer than a few weeks or months or years. I just hope that I won't have my morphine sulfate contin taken away, because some people (who are probably healthy and have no idea what chronic intractable pain is like) have decided that our meds that were prescribed for pain aren't really pain relievers. I forgot my morning pill last week, and by evening I knew exactly how much of a pain reliever it is, even at a 15mg low dose. My PCP has already stopped allowing Percocet, so I only take it at night when the pain is at its worst, trying to make what's left last longer. Are we all destined for alternative pain killers? Even if we have to get them illegally? I guess we'll find out, probably sooner than we'd like.

Time for me to shut up and take my night time pills, even ones that are just tricking my mind into thinking that the pain in my feet isn't real.

Jim