Connect
← Return to Husband has Essential Thrombocythemia (ET) & MCI
Discussion
Husband has Essential Thrombocythemia (ET) & MCI
Caregivers: Dementia | Last Active: Jul 7, 2021 | Replies (24)Comment receiving replies
Hi @tresman10 - The best information I ever got was from a 6-week program called The Savvy Caregiver that our local Council on Aging provided free. The program was originally developed by a group from the University of Minnesota and it is excellent - providing advice for all the stages of dementia. It begins with the time right after diagnosis and goes through all the way to end-stage dementia. It gives the caretaker advice on how to assess risks, how to relieve stress and many many other important topics. You can get the manual at this address:
https://www.hcinteractive.com/files/pdf/SavvyCaregiverManual.pdf
It's 176 pages but its packed with down-to-earth guidance for day to day lifel. If you can't take the course, I would download the manual. In fact, I've taken the course and I still downloaded the manual for reference. Could you take a look and see if this is something you would find useful?
Replies to "Hi @tresman10 - The best information I ever got was from a 6-week program called The..."
All i can say is WOW & TY!!!!! This manual is priceless. I downloaded it & have read now twice. I learn something each time. Is there a way to get a hard copy of this manual? I would like to write notes in it as i read. I am watching the progression&think it would help me to keep notes. Ty so much for sharing this resource. I will admit i got an emotional overwhelm reading it too. Knowing what it's ahead on this road is quite a heavy load. Count my blessings that husband is a happy&content fellow.
Connect
Ty Ty ty...I downloaded the manual& am reading through it. So far it is spot on with me, daily life, challenges, and education. This will get me up to speed on what to do. We don't have family near us & have a few casual friends where we live in retirement community. Really I am on my own figuring this out until now. Some days I am on verge of melt down, no trigger just daily stuff catches up & am emotionally drained.. I am now encouraged to see i am on the right track & will learn from this manual how to care for both of us. I try to be strong, successful most of the time. My go to place is in the kitchen today. Couple hours of baking and all is well again.