← Return to Husband has Essential Thrombocythemia (ET) & MCI

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@tresman10

Ty for of your input. Habit sounds great,but travelling its no longer an option. Discovered this the hard way. But I am learning allot from the many posts & have implemented a couple tools mentioned. Successful& useful. I am eager to learn from these testimonials. Simple item of daily calendar to track days&make notes. Also a wrist watch that shows time,date&day of week in large numbers has been very helpful. Now knowing I am not alone&have this forum is quite a relief. So many Dr thought i was just a nut case, or overbearing spouse who was just making up stories. Geez! So many test with little results. But platelet Dr confirmed MIC & move forward. I informed d r at appts that info hubby provides cannot be counted upon as true or accurate. I know this now too. The answer to a question can change multiple times in 5 min. I feel relief having this forum to discuss it. Ty!

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Replies to "Ty for of your input. Habit sounds great,but travelling its no longer an option. Discovered this..."

@tresman10 I understand somewhat of what you mean by your husband being an unreliable informant. My mom was like that as well. I had to prepare doctors, attorneys, etc. for some of the misinformation, she would provide and let them know what was the truth. My mom always seemed reliable to professionals but really was not so at all.