@amroberts Hi, Amber, let me add my welcome to Mayo Connect! You have had some good responses here to your concerns, and we all seem to agree that is is indeed confusing and concerning to have the symptoms you are showing. You were very thorough in describing your situation. Have you been journaling what you are going through, and showing that to your medical doctors? Many times that really helps them to understand when the different manifestations occur. Afterall, in an office setting, you cannot replicate that shaving legs in the shower, or going for a walk, etc! Writing down the time of day, symptom, severity, activity just before, perhaps even mealtime, will help.
A teaching hospital or Mayo Clinic may hold the key to figuring all this out. It's good your mother is noticing things also, and it sounds like you have her support.
I hope you will come back and let us know what you decide, and how we can help you?
Ginger
Thank you.
I did an in depth journal when they did the halter monitoring. Besides that I just kind of have a running document on my phone where I add new symptoms and severities. But I think journaling in more detail is a good idea that I will try. Thank you for the idea.