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@amroberts

Thank you for the information. I have done some research, but I have not been on the websites you posted.

I have asked my primary dr about getting a referral to the Mayo Clinic or something like that. She thinks that I should talk to an infectious disease dr and get a second cardiologist opinion first. It’s just a little frustrating because it is taking so long to get in to see these other doctors. But I called the infectious disease dr and the cardiologist today to see if I could get my appointments moved up. I did get one moved up, and they are working on the other. So i will be asking my primary doctor about the Mayo Clinic or a teaching hospital after these specialist appointments in the next couple weeks.

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I'll be praying for you. I have a lot of the same symptoms, mine are caused by AFIB, but I'm in my 60's, I do suspect though that Ihad it all my life, undiagnosed, until a doctor happened to pick it up on an EKG during a ER visit. I pray for strength for you, as you keep going through this search for answers. I do think the Mayo clinic would be the best option for you, as they treat the whole patient. Best of luck to you my dear!