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Feeling awful for 7 months and doctors don’t know what’s wrong
Just Want to Talk | Last Active: May 18, 2020 | Replies (23)Comment receiving replies
Hello @amroberts,
I've read with interest your post about your ongoing health problems. I'm so glad that you and your medical team are persisting in looking for answers. It can really be frustrating to have symptoms like yours and not to understand the origin, isn't it?
While I understand that it has been several years since your diagnosis of ehrlichiosis (a tick-borne disease), I found some information about this on the CDC website. https://www.cdc.gov/ehrlichiosis/treatment/index.html. It would be good to always remind the new doctors you see about having had ehrlichiosis.
You also mentioned, "the results said pulmonary pressure was not calculated due to poor envelope strength." I'm not sure what that means, but here is some information about Echocardiograms from the American Heart Association, https://www.heart.org/en/health-topics/heart-attack/diagnosing-a-heart-attack/echocardiogram-echo.
The advice that has been posted about seeking another opinion from a teaching hospital/clinic, like Mayo or a university medical center, is a very good suggestion. Do you plan on following up with that?
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Thank you for the information. I have done some research, but I have not been on the websites you posted.
I have asked my primary dr about getting a referral to the Mayo Clinic or something like that. She thinks that I should talk to an infectious disease dr and get a second cardiologist opinion first. It’s just a little frustrating because it is taking so long to get in to see these other doctors. But I called the infectious disease dr and the cardiologist today to see if I could get my appointments moved up. I did get one moved up, and they are working on the other. So i will be asking my primary doctor about the Mayo Clinic or a teaching hospital after these specialist appointments in the next couple weeks.