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Feeling awful for 7 months and doctors don’t know what’s wrong
Just Want to Talk | Last Active: May 18, 2020 | Replies (23)Comment receiving replies
Okay, thank you.
I have also seen an ENT specialist (via zoom), I am scheduled to see infectious disease May 29, and I am scheduled to see another cardiologist June 26 for another opinion. (It has been difficult getting in to see other doctors and specialists during this Covid stuff.)
I had my gallbladder removed when I was 14, was later diagnosed with ehrlichiosis (a tick borne illness) when I was 16 after a 1 week hospital stay where my liver was struggling among other things (I was very sick), and I have a systolic heart murmur.
I have taken a round of antibiotics, steroids, and an anti-viral medication. My doctors have also tried medications to treat hypo or hyper thyroidism, panic attacks, depression, water pills, potassium pills, and some others just to see if anything would help my symptoms. But none of the medications helped.
Replies to "Okay, thank you. I have also seen an ENT specialist (via zoom), I am scheduled to..."
@amroberts Glad to hear about the schedule Dr.s you are going to see Let us know we care here .
Hello @amroberts,
I've read with interest your post about your ongoing health problems. I'm so glad that you and your medical team are persisting in looking for answers. It can really be frustrating to have symptoms like yours and not to understand the origin, isn't it?
While I understand that it has been several years since your diagnosis of ehrlichiosis (a tick-borne disease), I found some information about this on the CDC website. https://www.cdc.gov/ehrlichiosis/treatment/index.html. It would be good to always remind the new doctors you see about having had ehrlichiosis.
You also mentioned, "the results said pulmonary pressure was not calculated due to poor envelope strength." I'm not sure what that means, but here is some information about Echocardiograms from the American Heart Association, https://www.heart.org/en/health-topics/heart-attack/diagnosing-a-heart-attack/echocardiogram-echo.
The advice that has been posted about seeking another opinion from a teaching hospital/clinic, like Mayo or a university medical center, is a very good suggestion. Do you plan on following up with that?
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Your levothyroxine friend here!
One pill every day. Would that other conditions would be that easy!
I am praying that the doctors that you see will answer all your needs.