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Member Neuropathy Journey Stories: What's Yours?
Neuropathy | Last Active: 16 hours ago | Replies (552)Comment receiving replies
I have burning pain in every surface of my body. Testing being done to find a cause for the small fiber neuropathy that has consumed by body. The person I was just three months ago no longer exists. I try to do as much exercises as I can to feel some normalcy. As of the last week my heels now are in pain. Everyday something changes or intensifies. I am waiting for my insurance to approve Lyrica as I am not feeling much relief on the gabapentin. Apparently my insurance company does not like the dosage and the doctor needs to adjust it. I never took anything but an occasional Tylenol. It does help knowing that I am not alone.
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So sorry to hear of your pain, Kelsey. I can identify with your comment: "the person I was just three months ago no longer exists." I feel that way also, though seven months have passed. A day at a time, I guess. Some long time sufferers have said that the pain can lessen in time. Maybe they simply get used to it. I have found websites dealing with chronic pain science helpful. An app that is helping me is curable. Hang in there. Hope the docs and meds can help you.
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@kelsey1234, The Foundation for Peripheral Neuropathy website has a section on Living Well with Peripheral Neuropathy that may provide some suggestions to try for some relief - https://www.foundationforpn.org/living-well/