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Member Neuropathy Journey Stories: What's Yours?
Neuropathy | Last Active: 12 hours ago | Replies (552)Comment receiving replies
I shared my journey before not much new to offer except to add many thanks for those of you who share and make me feel less isolated. I was thinking this morning about how unrelenting this burning pain is like tiny branding irons pushing on every sing nerve in my feet. I am all out of medication attempts after 14yrs i have tried everything to no avail. No cause a lot of test validate the pain which is good so neuro dr. don't sign me off as nuts! I commend all of you for your valiant fights and whenever you feel discouraged remember you are not alone even if your struggle is yours alone. Take care
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I have burning pain in every surface of my body. Testing being done to find a cause for the small fiber neuropathy that has consumed by body. The person I was just three months ago no longer exists. I try to do as much exercises as I can to feel some normalcy. As of the last week my heels now are in pain. Everyday something changes or intensifies. I am waiting for my insurance to approve Lyrica as I am not feeling much relief on the gabapentin. Apparently my insurance company does not like the dosage and the doctor needs to adjust it. I never took anything but an occasional Tylenol. It does help knowing that I am not alone.