← Return to Member Neuropathy Journey Stories: What's Yours?

Discussion

Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)

Comment receiving replies
@notborntoburn

I shared my journey before not much new to offer except to add many thanks for those of you who share and make me feel less isolated. I was thinking this morning about how unrelenting this burning pain is like tiny branding irons pushing on every sing nerve in my feet. I am all out of medication attempts after 14yrs i have tried everything to no avail. No cause a lot of test validate the pain which is good so neuro dr. don't sign me off as nuts! I commend all of you for your valiant fights and whenever you feel discouraged remember you are not alone even if your struggle is yours alone. Take care

Jump to this post


Replies to "I shared my journey before not much new to offer except to add many thanks for..."

I have burning pain in every surface of my body. Testing being done to find a cause for the small fiber neuropathy that has consumed by body. The person I was just three months ago no longer exists. I try to do as much exercises as I can to feel some normalcy. As of the last week my heels now are in pain. Everyday something changes or intensifies. I am waiting for my insurance to approve Lyrica as I am not feeling much relief on the gabapentin. Apparently my insurance company does not like the dosage and the doctor needs to adjust it. I never took anything but an occasional Tylenol. It does help knowing that I am not alone.