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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)

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@artscaping

Good afternoon @kelsey1234 and @johnbishop........I was just going out for a walk on the river and I went to sign out and found your post Kelsey. I was diagnosed with SFN 4 years ago. Within a few weeks I knew the gabapentin wasn’t going to help me that much with the mental side of this journey. My depression including suicidal issues was not being addressed. And I was not sleeping well. The leg pain kept waking me up. My new neurologist didn’t yet know me well but he “got It”. He talked to me telling me that in order to get control of the situation I needed Nortriptyline, So I said yes. What a perfect solution for me at that time. We started easy and increased as needed. I stayed with it for two years and then tapered off and replaced it with medical cannabis with my clinician’s support and assistance.

I am definitely a suspicious critic of chemical medications of any kind. And then came aging and other surprisingly difficult medical situations. Give it a try perhaps, You can taper off.....takes a couple of months or so if you have been on it for two years.

Please let John or me know what your thinking is, and what we can do to help.

May you be safe and protected from inner and outer harm.
Chris

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Replies to "Good afternoon @kelsey1234 and @johnbishop........I was just going out for a walk on the river and..."

Hi Chris, Thank you for sharing. I appreciate all information to assist me in navigating this conditions. Some days are better than others when dealing with pain. Cold has a negative impact with secondary Raynaud's syndrome which only increase the pain. Mentally it has been a journey and I fortunate for my friends and family. I am working with a counselor who deals specifically with pain counseling. It has been an emotional rollercoaster of emotions. I might try the Nortriptyline but only at night to maybe help with sleep. The though of having to taper off a medication is scary to me. I wish I lived in a state that permitted medical cannabis. I have taken CBD oil, but it didn't really do anything over the month that I took it. Thank you again.

Hi
I don't kow how to answer your question but did the Nortriplyne make you constipated. I took it for 2 months & I got really constipated so I had to stop it but it did help with the pain. I wish I could go back on it.