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Member Neuropathy Journey Stories: What's Yours?
Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)Comment receiving replies
I am not sure where I belong but that’s nothing new, lol. I recently learned I have had a TBI from aneurysm starting in the late 1990. I’m a day late and lots of pennies short, lol. Any suggestions are greatly appreciated but I tried may different rabbit holes but it was hard because I could not communicate clearly my deficits for lack of official diagnosis. I also live in a community that is outside of medical initiative. I was fired while on medical leave. I was participating in HepC medical trial which got the best of me. Well that’s enough for now I’m looking forward to moving on. Ty
Replies to "I am not sure where I belong but that’s nothing new, lol. I recently learned I..."
@mush198056
Hi Ty, welcome to Connect. Boy you packed a lot into one short post. You only recently got a diagnosis of a TBI that occurred in 1990? What all have you been going thru all these years? I'm betting it's not been a fun ride. Please elaborate for us all that you have gone through. There are many people here who will try to offer helpful suggestions, we'd just need a little more info. My sympathies go out to you and wishing you all the best. Hank
Connect
Hello @mush198056, Welcome to Connect. Connect is a great place to learn from others with similar symptoms. As patients I know it can be difficult at times to communicate with doctors and medical staff which is one of the strengths of Connect. The more you learn about your condition, hopefully the better you get at asking the right questions of your doctors and care team. There is another discussion that you might find helpful since you mentioned you recently learned you have had a traumatic brain injury (TBI) from an aneurysm.
TBI and brain aneurysms: https://connect.mayoclinic.org/discussion/tbi/
You mentioned you were participating in a Hepatitis C clinical trial but it got the best of you. Are you able to share a little more about the trial and have you been diagnosed with Hepatitis C?