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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Oct 17 5:52am | Replies (571)

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@sunnyflower

Hello Helen. Good to hear from you. I hope this finds you well.

I experience numbness from both my neuropathy and Gabapentin. Before Gabapentin I only had intense stinging/burning/pins and needles and it felt like I was missing the top layer of my skin. After taking Gabapentin I am now am so numb that I can't feel wetness on my body, even when in a swim pool. I can feel temperature and some pressure but not always. My experience is valid. Here is a website to confirm Gabapentin can cause numbness: https://www.ehealthme.com/is/gabapentin/numbness-and-tingling/.

Regarding Alpha Lipoic Acid types, I'm afraid you have misread or misunderstood what I wrote. I never said that R ALA is superior to S ALA or S&R ALA. I said that my Endocrinologist said the R&S ALA is the best. She told me the R ALA was only tested on rats.

I'm sure your intentions are good but basically you challenge me to prove my statement that Gabapentin can cause numbness and that what I said about R ALA is a fallacy.

I take what I write as a very serious responsibility to be accurate and never want to lead anyone astray. I welcome any corrections to what I say b/c I could be wrong at any time but perhaps they could come more gently and less assuming and judgmental.

Warmest wishes, stay well, Sunnyflower

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Replies to "Hello Helen. Good to hear from you. I hope this finds you well. I experience numbness..."

Sunny, what I am understanding from the URL is that people who take gabapentin may be suffering from numbness, burning and tingling, (that is why they take the drug) not that those are side effects. From what I understand, numbness may follow those above symptoms in many cases. I was interested in why your dr. felt that the combo of the 2 Ala’s were better, as I had always read that RAla was superior, that is why I switched! I don’t mean to challenge you, like I said it is not always possible to have “proof” of any statements. sorry if I misunderstood. Helen

Hello Helen and @bustrbrwn22, I re-read the article I included in my response to you @helennicola, above, for the 3rd time. The entire context is about some side effects of Gabapentin and drugs like it and it does say that numbness can be a side effect. It is a little confusing. It appears that not a lot of people experience this. See the numbers in their study. I made a mistake when I said ny Rheumatologist told me what the best ALAis. It was my Neurologist. Sorry about that. Hope you have a good weekend. Much better than tolerable and many blessings. Warmest wishes, Sunnyflower 😊