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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: 2 days ago | Replies (552)

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@helennicola

Hi Ea1, I don’t know if I agree, I’ve had SFN for 3 yrs., had all the usual tests minus the skin punch test, had no underlying health issues, no diabetes, no accidental nerve damage, no drugs, drinking, exercised and ate healthy so my neuro said “idiopathic”. She thought the end result would be the same: managing the symptoms and trying to control the progression. I would get a punch test tomorrow if I knew it could make a difference, what is your reason if I may ask? I hope you get some answers that you can share with us. Helen

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Replies to "Hi Ea1, I don’t know if I agree, I’ve had SFN for 3 yrs., had all..."

@ea1, and @helennicola, Just the way I see it. I think my neurologist knew my challenge was SFN. He also knew the test evidence would make it easier to get help from pharmacists and financial assistance from insurance companies when there is a definitive diagnosis. Just what percentage of the nerves are in the testing sample can also tell what stage we might be in and where the road might be headed.