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Member Neuropathy Journey Stories: What's Yours?
Neuropathy | Last Active: 1 day ago | Replies (552)Comment receiving replies
Chris
Thanks for the warm welcome into the group. I feel like I am at the beginning of a long trip.... started in late 2018. I fully agree that skin SFN test is a must and would also like to find the cause of the SFN if possible. The neurologist I went to wasn’t interested in further testing which was quite surprising.
Difficult to get appointments at neuromuscular specialists in Florida either at Mayo Clinic (don’t take Neuropathy patients) or UF (don’t take new patients). The best I could get is a June appointment at USF.
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Hi Ea1, I don’t know if I agree, I’ve had SFN for 3 yrs., had all the usual tests minus the skin punch test, had no underlying health issues, no diabetes, no accidental nerve damage, no drugs, drinking, exercised and ate healthy so my neuro said “idiopathic”. She thought the end result would be the same: managing the symptoms and trying to control the progression. I would get a punch test tomorrow if I knew it could make a difference, what is your reason if I may ask? I hope you get some answers that you can share with us. Helen