Good afternoon @ean. Thanks for joining us as we pursue solutions for the symptoms of neuropathy. What you need is a friend like John who has tried it all, evaluated it even more, and has a gentle way of introducing you to options and treatments. I have SFN, small fiber neuropathy and have been walking down the path with John for about four years. Generally, our symptoms are similar and we share treatment ideas and experiences.
The only kind of unfair item is that John has no pain. Maybe that is because I have enough for both of us. I offered to trade him one day but he didn't like my offer.......1 day of my pain for 2 days of his numbness. No go!
You see, we all suffer, we all attempt to structure a somewhat pleasant life. We research, we learn, we listen and then we give it a try. Sometimes we share the results, sometimes we are both in different SFN realms. If you do want to verify that you have SFN, you can ask your specialist for a skin biopsy test. Not difficult, no pain, and pretty specific results. At least that is a place to start.
May you be safe and protected.
Chirs
Chris
Thanks for the warm welcome into the group. I feel like I am at the beginning of a long trip.... started in late 2018. I fully agree that skin SFN test is a must and would also like to find the cause of the SFN if possible. The neurologist I went to wasn’t interested in further testing which was quite surprising.
Difficult to get appointments at neuromuscular specialists in Florida either at Mayo Clinic (don’t take Neuropathy patients) or UF (don’t take new patients). The best I could get is a June appointment at USF.