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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: 2 days ago | Replies (552)

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@avmcbellar

Through trial and error, so far I have discovered the burning of my lower limb intensifies as my environmental temperature decreases. I have placed both feet in a bucket of warm water. I have neuropathy only in one leg. The normal leg detects the correct temperature of the water while the other leg feels a much cooler water temperature. Mind you both legs are in the water at the same time. The same will hold true for air temperature. I believe since there are not enough nerves to sense true temperatures, the nerves send the wrong signals to the brain. To compensate for a much lower air temperature, the brain will cause an increase in body temperature to the leg with the neuropathy, thus the burning pain. I have not tried the opposite e.i. to increase and sustain the warmer air temperature in order to stop the burning pain. I have experienced an increase in burning pain as a result of more carbs in my diet or with a sustained decrease in air temperature. I had the same thought with cooler air temperatures that they were comforting with the burning pain. I live in Florida. During the holidays I visited a state with a colder climate. Temperatures had reached below freezing. I was camping and exposed to sustained cold temperatures. During my visit I had experienced more burning and couldn’t understand why until now. With the winter Florida temperatures dropping after the summer season, I seem to be having more burning now than from the summer time. I will continue to learn through my journey of this awful disease. I hope to someday provide answers as I realize everyone is different and few may benefit from my discoveries. Best wishes for finding relief.
Toni

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Replies to "Through trial and error, so far I have discovered the burning of my lower limb intensifies..."

Oh my gracious!!! I'm going to save this b/c I have to read it again. It sounds like good logic/rationale! Interesting! Good on you for doing the testing! Thanks for sharing!!! Many blessings, Sunnyflower