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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Oct 17 5:52am | Replies (571)

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@artist01

Hello again, @jesfactsmon. Thankyou so much for your caring reply. Actually the food here at my seniors residence is very good, but no, they don't cater to special diets, even Diabetic diets. I've pursued that route extensively with no luck. They are rigid on that one.
I've had gout once many years ago so know what that feels like and am confident my neuropathy is not a symptom of gout. Like your wife, I'm unable to take most meds. My one specialist told me that CBD Oil was about all they could try for me at this point, and yet the anticoagulants are presenting a major problem. I have yet to check with my major specialist (one of 4!) to see if he can offer more insight. My research tells me that if my anticoagulant is not metabolized by CYP450, then CBD Oil is ok to take, but Eliquis falls into that category. Two specialists, referring to their doctor-accessed website, said it was ok to take CBD with Eliquis. My CBD oil is 31.1, so barely any THC. My amateur theory is that maybe I could switch from 2 x 5mg per day of Eliquis to 1 x 5mg per day and add the CBD so that the combination would not thin my blood too much, CBD being a natural blood thinner. Apparently, taking the two could thin the blood too much, causing dangerous bleeding. (pretty soon I will have my medical degree! lol). I plan to present that idea to my No. 1 specialist, the one who initially said CBD would be ok to take with CBD Oil.
Thankyou for your thoughts, Hank. I will read the website info you sent me
for more insight.
Keep well.
@artist01 Laurie

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Replies to "Hello again, @jesfactsmon. Thankyou so much for your caring reply. Actually the food here at my..."

@artist01
Laurie, I am sorry that cbd oil is the only option for you. Are you in a state where medical marijuana is legal? That could be a good alternative to the cbd oil as it might not present the blood thinning issue. If your neuropathy is anywhere as bad as what my wife experiences you need SOMETHING to give you some relief, even if it isn't continuous relief. My wife uses marijuana about twice a week. So she suffers when she isn't using it. And unfortunately she can't take it every day or it loses it's effectiveness for her. But at least she has it for some of her really bad nights (her pain gets progressively worse throughout the day and is at it's peak for the last 6-8 hours of her day most days. I hate to see her suffering so as her only caregiver I do what I can for her. I managed to find a product called Penetrex that she slathers on before bedtime which usually calms the burning long enough for her to get to sleep (not always but as a rule). The other thing she does is kratom, a leaf from SE Asia. It does help the pain but one dose will make her very drowsy for like 24 hours, so not great for the daytime hours. She has not found cbd oil (the kind I got for her has max THC) to help much for some reason. I think I asked but not sure you answered: have you tried gabapentin, lyrica or cymbalta? I know you do not tolerate drugs well but just wanting to clarify what you have previously tried. Best, Hank