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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Oct 17 5:52am | Replies (571)

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@jesfactsmon

@artist01
Hi. Is there any chance that your reaction to carbs might possibly be gout and not neuropathy? From something I just read, gout can be triggered by sugars (which carbs are). Just wondering. Institutional food is generally awful (not always but usually) and I am sorry that is what you are relegated to. I assume they do not cater to special situations? I think some nursing facilities are appalling in how little actual "care" is being dispensed. I am sorry to hear that cbd oil interacts negatively with your anticoagulant meds. I know the frustration that must cause you. My wife has very bad neuropathy but can not tolerate almost ANY pain killers, even OTC ones as she is allergic to all of them. That is mainly why she can only use THC products and kratom. Some cbd oil is available without THC and I wonder if that might work better for you? Have you already been routed through the usual pain meds by your doctors, i.e. gabapentin, lyrica and cymbalta? If so, how did you do with them? Being in a senior facility may limit your options greatly so this might not be an option, but many on this sit have expressed numerous times how much myofascial massage has helped them. If you'd like to know more there is a discussion here you could read:
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/?utm_campaign=search
I have so much compassion for you, and I hope you can find some solution to you cbd issue as well as some help from your residence as to your dietary options. I'm sure you have done this but I'll ask just in case: have you asked them whether they might be able to make a concession or two with your meals to have less carbs and more vegetables, preferably fresh ones? Can you enlist any family members to help go to bat for you on this?
Best of luck, Hank

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Replies to "@artist01 Hi. Is there any chance that your reaction to carbs might possibly be gout and..."

Hello again, @jesfactsmon. Thankyou so much for your caring reply. Actually the food here at my seniors residence is very good, but no, they don't cater to special diets, even Diabetic diets. I've pursued that route extensively with no luck. They are rigid on that one.
I've had gout once many years ago so know what that feels like and am confident my neuropathy is not a symptom of gout. Like your wife, I'm unable to take most meds. My one specialist told me that CBD Oil was about all they could try for me at this point, and yet the anticoagulants are presenting a major problem. I have yet to check with my major specialist (one of 4!) to see if he can offer more insight. My research tells me that if my anticoagulant is not metabolized by CYP450, then CBD Oil is ok to take, but Eliquis falls into that category. Two specialists, referring to their doctor-accessed website, said it was ok to take CBD with Eliquis. My CBD oil is 31.1, so barely any THC. My amateur theory is that maybe I could switch from 2 x 5mg per day of Eliquis to 1 x 5mg per day and add the CBD so that the combination would not thin my blood too much, CBD being a natural blood thinner. Apparently, taking the two could thin the blood too much, causing dangerous bleeding. (pretty soon I will have my medical degree! lol). I plan to present that idea to my No. 1 specialist, the one who initially said CBD would be ok to take with CBD Oil.
Thankyou for your thoughts, Hank. I will read the website info you sent me
for more insight.
Keep well.
@artist01 Laurie