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Member Neuropathy Journey Stories: What's Yours?
Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)Comment receiving replies
Hi @jesfactsmon Hank.
I have GCA as well as Diabetes, and have suffered terribly with neuropathy in my legs. My Diabetes is well controlled on a low insulin injection daily and I had never experienced neuropathy until my GCA diagnosis
1 1/2 years ago when I was hospitalized and given 3 days of massive Prednisone I.V. Since then, the neuropathy has been constant, and so much worse if I eat carbs. I live in a seniors' residence, so it's difficult to avoid carbs on their 2 menu choices for lunch and dinner. I avoid pasta, rice, etc., but the second choice is often half a sandwich and soup that often has potatoes, pasta or rice as an ingredient. So, bread and more carbs. Even the half sandwich sets off the neuropathy.
My G.P. yesterday said she may prescribe a medication to ease the neuropathy but I'm loathe to take on another Rx. Any suggestions, or experience with these meds, would be appreciated.
I've been trying CBD oil, but had a blood clot December 21st so was switched from Zarelto (before the clot) to Lixiana (CBD compatible) at which time, after 10 days, I had the clot, to finally Eliquis (CBD compatible). Not feeling well on Eliquis so may have to go back on Zarelto and drop the CBD oil. Only take 1/3 dropper so far, a miniscule dose, but it has helped me sleep. Anyone experienced with CBD oil and blood thinners would also be appreciated. I was dearly hoping to continue with CBD. Thanks everyone. Sorry to be so verbose! Lol
Replies to "Hi @jesfactsmon Hank. I have GCA as well as Diabetes, and have suffered terribly with neuropathy..."
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@artist01
Hi. Is there any chance that your reaction to carbs might possibly be gout and not neuropathy? From something I just read, gout can be triggered by sugars (which carbs are). Just wondering. Institutional food is generally awful (not always but usually) and I am sorry that is what you are relegated to. I assume they do not cater to special situations? I think some nursing facilities are appalling in how little actual "care" is being dispensed. I am sorry to hear that cbd oil interacts negatively with your anticoagulant meds. I know the frustration that must cause you. My wife has very bad neuropathy but can not tolerate almost ANY pain killers, even OTC ones as she is allergic to all of them. That is mainly why she can only use THC products and kratom. Some cbd oil is available without THC and I wonder if that might work better for you? Have you already been routed through the usual pain meds by your doctors, i.e. gabapentin, lyrica and cymbalta? If so, how did you do with them? Being in a senior facility may limit your options greatly so this might not be an option, but many on this sit have expressed numerous times how much myofascial massage has helped them. If you'd like to know more there is a discussion here you could read:
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/?utm_campaign=search
I have so much compassion for you, and I hope you can find some solution to you cbd issue as well as some help from your residence as to your dietary options. I'm sure you have done this but I'll ask just in case: have you asked them whether they might be able to make a concession or two with your meals to have less carbs and more vegetables, preferably fresh ones? Can you enlist any family members to help go to bat for you on this?
Best of luck, Hank