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Member Neuropathy Journey Stories: What's Yours?
Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)Comment receiving replies
@helenholland3
My word Helen, that is a very long road you have traveled with PN. It sounds like you are saying it was more tolerable for the first number of years until you reached 50 at which time it took a turn for the worse, is that right? You say you take Lyrica now for pain. Have you had any luck with any other pain treatments or is that it? My wife has it mainly in her feet and ankles. She mostly uses marijuana and kratom to help ease her pain.
Since this is the journey stories discussion, you can add more detail to your story if you wish. We are interested! Best, Hank
Replies to "@helenholland3 My word Helen, that is a very long road you have traveled with PN. It..."
Hi Hank my symptom's are all the above. It seems my PN has travelled although my body. I have tried many drugs but nothing works. Marijuana & cannabis oil is not legal in Queensland, Australia so I don't have that option. I have other issues which I thing is caused by my neuropathy. Doctors aren't looking at the big picture here with my other issues. They can't treat the cause because they have no idea where my neuropathy is coming from the cause.
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Hi @jesfactsmon Hank.
I have GCA as well as Diabetes, and have suffered terribly with neuropathy in my legs. My Diabetes is well controlled on a low insulin injection daily and I had never experienced neuropathy until my GCA diagnosis
1 1/2 years ago when I was hospitalized and given 3 days of massive Prednisone I.V. Since then, the neuropathy has been constant, and so much worse if I eat carbs. I live in a seniors' residence, so it's difficult to avoid carbs on their 2 menu choices for lunch and dinner. I avoid pasta, rice, etc., but the second choice is often half a sandwich and soup that often has potatoes, pasta or rice as an ingredient. So, bread and more carbs. Even the half sandwich sets off the neuropathy.
My G.P. yesterday said she may prescribe a medication to ease the neuropathy but I'm loathe to take on another Rx. Any suggestions, or experience with these meds, would be appreciated.
I've been trying CBD oil, but had a blood clot December 21st so was switched from Zarelto (before the clot) to Lixiana (CBD compatible) at which time, after 10 days, I had the clot, to finally Eliquis (CBD compatible). Not feeling well on Eliquis so may have to go back on Zarelto and drop the CBD oil. Only take 1/3 dropper so far, a miniscule dose, but it has helped me sleep. Anyone experienced with CBD oil and blood thinners would also be appreciated. I was dearly hoping to continue with CBD. Thanks everyone. Sorry to be so verbose! Lol