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Member Neuropathy Journey Stories: What's Yours?
Neuropathy | Last Active: Oct 17 5:52am | Replies (571)Comment receiving replies
Good morning "@jesfactsmon". I am reviewing this morning and looking for my boo-boos. I see that I didn't answer your question about what might be responsible for my neuropathy. First of all, I don't have diabetes and haven't had chemo. No one in my family complained of anything like neuropathy. My Dad was one of 9 and had a twin. It didn't show up there. My Mom was an only child within another family of 9 on her mother's side.
So.....my theory is that my prior sports accidents and 13 orthopedic surgeries, accumulated enough memories in my body that they would be embarrassed to be called idiopathic. So....there you go...I don't think there is any way those orthopedic surgeries on all my major peripheral appendages plus the head and neck injuries could have left me free of neuropathic pain. Knowledge is power. Have a great day.
Chris
Replies to "Good morning "@jesfactsmon". I am reviewing this morning and looking for my boo-boos. I see that..."
Hi Chris, I'm just hurting reading about your injuries, surgeries, etc. EEEOUCH!!!!!!!!!!!!!!! I've had a lot of injuries too and do believe they are responsible for some of my spine pathology/neuropathy. I wish the best for you: the absence of pain! Warmest regards, Sunnyflower
@artscaping one of my favorite meetings of the Minnesota Neuropathy Association before if disbanded was the 20 year celebration of the association. Notes from my favorite speaker an 80 year old Neurologist from the University of Minnesota, Dr. William Kennedy on idiopathic diagnosis 😂🤣
Dr. William Kennedy – “Simple inventions that quantify touch on finger, vibration on toes and sweating in neuropathy”
My favorite speaker of the day. All of the speakers had a Q & A after their talk and one of the burning questions of the day was how many people are affected by neuropathy in the U.S. and around the world. Pam and Dr. Walk had both said they thought the numbers were around 20 million in the U.S. and up to 128 million in China. Dr. Kennedy said he would take exception with his younger counterparts and said it’s more like 100% if you live long enough. Since there was some discussion of idiopathic PN, Dr. Kennedy asked if we knew how
the diagnosis is made for idiopathic. Got my best laugh of the day when he told us it got the name from the idiot neurologist who diagnosed it. Dr. Kennedy went on to talk about his research work on developing a tool he would like to make available in every GPs office to easily test for neuropathy. More information can be found on his website: http://kennedylab.med.umn.edu/
@artscaping
Wow Chris, I am IMPRESSED. You answered a post I made in May which I now have no recollection of. You must be pretty organized. I went back and reread your post to which I had responded and it was an interesting post, how your PN manifested, but again my short term memory for that expired a long time ago apparently. Kudos to you for your organizational system, whatever it is. And thank you for your answer. I am honored that you answered such an old innocuous question of mine. Best to you, and warm wishes, Hank
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@artscaping Doesn't take rocket science, does it Chris?!?