Good evening @kyc117, thank you for posting about your medical conditions and upcoming tests. I am glad that you already got the punch biopsy. That can be a decisive indicator of if and how much your nerves have been disappearing or dying in every cell. Then you can trace their path. Stay with the folks here on Connect. There isn't much that these members haven't experienced. And better yet, they are willing to share and help others.

The major hurdle is that there is no cure for neuropathy and any of its types and causes. We must fight hard to accept the reality and support each other. We are not medically trained, just experienced and ready to help. Everyone is unique.....as you will find out. Good luck with your test.....if you feel comfortable, please share your results.

May you be safe, protected and free.
Chris

Dear kyc117, I am very sorry to hear about your afflictions. Wow. It is basically an inconvenience to some people, to have an ill person in their lives, especially a family member who lives in the same home, who is afflicted. And even more so, they don't want to have to adjust their expectations. I understand what it's like, believe me!

It sounds like your neurologist validates you and is willing to order diagnostics, hopefully for as long as and many as it takes to get you diagnosed. This is a VERY good thing! 👍

I will pray that you will be able to do well at your new job, that you get accurately diagnosed and respond well to any treatments, and that your family is willing to adjust their expectations with compassion and love. They will need to understand this is what they need to do. You may have to explain it to them.

Blessings, Sunnyflower 🙏♥️

Hi @kyc117 I am wanting to post a proper reply to your post but am leaving in a few moments to a volunteer job. For now let me just say a very warm welcome to you, as both Chris and Sunny have already done. It is a scary thing to suddenly find yourself with a bunch of odd new physical phenomena happening to your body. As for your teenagers, well, we all know what they can be like sometimes don't we? I will try to post more to you later or else others will chime in today before I ever get to it again. Hopefully this will turn out to be not much and will go away and just be an unpleasant memory. But in case it doesn't, as Chris said, there are a lot of caring and knowledgeable as well as completely non judgemental people here who are more than willing to help in whatever way they can. Take care for now, all the best to you. Hank

@kyc117 Hello and welcome to Connect. I'm Rachel and wish it were for better circumstance that you join us, but, that's what we're here for. One step at a time. I'm going to be rooting for you and your skin biopsy results. I'm sincerely wishing for the best and will be awaiting your results, right along with you. Please keep us posted.
Rachel

@kyc117 There are so many, many issues when you get sick. My very best of luck to you in discovering exactly what you have. I don't want to be repetitive and say exactly what other folks here have said, but know that we are a great bunch of people here, and will support you as best we can. We suffer from Neuropathy and know it day and night. Always there. As far as family support, teenagers in many ways, are babies still. They look to you for support, not Vice Versa. I have a 38 year old son that is not much better. So this is a good place to talk. Come and join us! Lori Miller