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Member Neuropathy Journey Stories: What's Yours?
Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)Comment receiving replies
Hi,my name is resa and in 54 yrs old. I have always been really healthy and i work a full time job.i hurt my shoulder at work and figured it was just a pulled muscle. A week later my fingers started going numb,and then my hand. FIRST neurologist, after a mri,sent me to a specialist, and he said herniated disc, 2nd neurogist said Chiari malformation and wanted to cut my head open.that freaked me out.and I got a 3rd opinion. And he wants to cut my back open! Now the nerve pain is from my waist up on my left side,all the way down my arm! Numb,burning, sticking,stabbing,pain from hell! My husband don t get how bad it is,and I still havet to work everyday in a glass factory, useing my hands! 40 hrs a week! By the time I get home, I want to die! Lyrica helps some,but it never goes away! But people don't get it cause they can't see it! I don't know what to do! I'm scared of surgery. Any advice out there?? Sorry so long!
Replies to "Hi,my name is resa and in 54 yrs old. I have always been really healthy and..."
@resawaller Hi Resa. We've spoke in the past on Connect and I recall you had been very distraught. Haven't heard from you in a while...I'm sorry to hear you are still fighting these neurological problems. Surgery is last! How about pain management...epidurals, nerve blocks? Have you tried these yet? Physical Therapy...myofacial release,. Ocupational therapy? Is your Lyrica at proper dose? Can it be increased for better results? I feel your pain and want you to know you are not alone.
Rachel
Resa, I looked through some of your previous posts. Firstly my heart goes out to you, I can hear you utter desperation. It's awful to have extreme chronic pain with nothing to give any relief. I was going to ask whether you have tried marijuana? That might be a big help. I noticed you mentioned Tennessee in one post from last year and I assume you live there (we do too) and I know medical marijuana is not legal here yet. I don't presume to suggest you buy some illegally if you would feel uncomfortable doing it. However while you wait for legalization you might try cannabus oil which is legal. Another thing you could try is kratom. Lori @lorirenee1 is a person on Connect who has used kratom extensively. I believe she orders hers from https://ethanaturals.com Anyway, I hope you can find something to give you more relief than you seem to be getting from Lyrica. Best, Hank
@resawaller @jesfactsmon @rwinney Hi Resa, I want to chime in here to try to help you. Hank and Rachel have said many of the things I would say, but I do want to really confirm how much Kratom helps. It is a plant from the SE Asia, and is put into pill form. Buy it at ethanaturals.com It is the only thing I use that really helps nerve type pain. I swear by it. Unfortunately, I have read that it can be addictive, so I take it every other day. But it literally takes pain away for 2 to 3 hours. If you want to know more, please let me know. Lori Renee
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Hi Resa, my first thought is, unless you have a clear diagnosis by at least two doctors that you trust including a surgeon that you trust implicitly, I'd go slow on agreeing to surgery. Surgery must always be the last resort as there are big risks to surgery itself as you sound like you already know. I'm sure someone here on Connect can steer you into some other things to try or look into before going the surgery route. Best, Hank