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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)

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@johnbishop

Hi @maryflorida, I thought I would jump in and offer some information I've found that may be helpful. A rheumatologist diagnosed my polymyalgia rheumatica (PMR) and a neurologist diagnosed my small fiber peripheral neuropathy.

What is a Rheumatologist?: https://www.rheumatology.org/I-Am-A/Patient-Caregiver/Health-Care-Team/What-is-a-Rheumatologist
What is a neurologist?: https://www.medicalnewstoday.com/articles/326717#about

And something that really jumped out at me -- What Our Colleagues Should Know: Neurologists & Rheumatologists Must Communicate:
-- https://www.the-rheumatologist.org/article/colleagues-know-neurologists-rheumatologists-must-communicate/

You mentioned in your first post that your rheumatologist prescribed the Gabapentin and that made you sick and then they prescribed Lyrica and that sent you to the ER. It might be helpful to write down a list of all your symptoms and maybe keep a daily log of your pain levels along with any questions you have for the rheumatologist. One question I would have for the rheumatologist or neurologist for any drug that is prescribed - how does this drug work to treat my symptoms?

Can you update us on how your appointment goes with the rheumatologist in June?

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Replies to "Hi @maryflorida, I thought I would jump in and offer some information I've found that may..."

John, thank you.. I can't, won't, complain to my children.. they too have enough hardships in life.. One has Sjogren's (sp) disease, another has heart failure. My husband was blessed to have a kidney transplant in 2018 and I take good care of him. But YOU! You know what is like for me and for you. I'll write things down and also let you know what happens with the rheumatologist. God bless you.