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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)

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@fredjan2016

In the spring of 2015, I went to the doctor for a sinus infection and mentioned that my feet get warm at night. The doctor ignored my sinus infection and used a tuning fork to check my feet. The doctor said I most likely had peripheral neuropathy and to see a neurologist. Before my neurologist appoint my feet started hurting in the evenings and I was taking hydrocodone for the pain. The neurologist did a biopsy and confirmed I had small fiber peripheral neuropathy in both feet. He said there was no cure, it would only get worse and that it would not kill me. My uncle, brother and sister all had peripheral neuropathy. For treatment I was on Gabapentin 900mg three times a day and it did nothing for the pain. They tried several other medications along with pain creams and none of them work on me. Gabapentin works great for my brother. The only thing that helps me is pain pills. I take Methadone HCL 10mg three times a day. If the pain gets bad, I wear cotton socks soaked in cold water for immediate relief. Exercise and a low carb diet also help with the pain.

The neurologist was correct, the pain has only gotten worse over the years. It hurts to stand or walk for more than 30 seconds. The longer I am on my feet the worse the pain gets. I must ride a scooter to shop. It took a couple of years of depression and counseling for me to be comfortable riding a scooter in public. It doesn’t’ bother me to ride it know. I had to by a portable scooter since only a few stores provide them.

I have had insulin resistance since ~2011. I worked out regularly for years and I am only a few pounds overweight.

My current pain management doctor is going to try installing neuro stimulators on both my feet. He did some tests and believes that will help with the ~50% of the pain.

This is my store and I’m sticking to it.

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Replies to "In the spring of 2015, I went to the doctor for a sinus infection and mentioned..."

Hi Fredjan, So sorry to hear about your condition. I to am prediabetic and pain in both feet began a month ago. The doctors thought it was due to a pinched nerve at L5/S1 but I had surgery in March this year to fix that problem but the pain has only gotten worse since then. It has been less than 2 months since the surgery so the nerve is still healing according to the surgeon. Gaba did not work for me. I'm now on a wait list to see the neurologist for another nerve conduction test and a consult on what medication might work. I'm curious about the neuro stimulators your Dr. is recommending. Could you please be more specific so I could bring it up with my Dr? There are several different devices and some require electric stimulation of the nerves in the spine that are causing the problem.
Thanks
James

I use curcumin which contains turmeric with some relief.