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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Oct 17 5:52am | Replies (571)

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@lorirenee1

Hi all, My journey to neuropathy was a short one. Found I had stage 1 Breast Cancer, and had a successful lumpectomy. Had radiation into the tumor right at the time of the lumpectomy, but never had chemo. About 4 weeks after surgery, as I was beginning to feel better from the surgery itself, my toes started overlapping, and I bought toe spacers. The overlapping lead to pain, and it just never left, and got much worse with time. Wound up at 2 neurologists, and both said I probably had an autoimmune response to the breast tumor, but blood work did not show that. However, neurologist said the test is inconclusive. When I did my nerve conduction test, the guy who did it said that he has had many patients who have only had radiation, that got neuropathy. My breast surgeon said she has never had anyone get neuropathy after surgery. There is a you tube video from Mayo that says when a person gets neuropathy within a month of surgery, it is from something to do with the surgery. At this point, I don't even care what it is from. I have not had a day without pain since my breast surgery recovery. I do not even think about breast cancer, because my mind is so occupied with pain. And there you have it.....My tale. Lori Renee

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Replies to "Hi all, My journey to neuropathy was a short one. Found I had stage 1 Breast..."

Lori. The doc’s response just makes me angry