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← Return to Radiation with or without Temodar for Glioblastoma?
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Radiation with or without Temodar for Glioblastoma?
Brain Tumor | Last Active: Jun 1, 2020 | Replies (10)Comment receiving replies
@daughterfuturemd, I don’t think I can be helpful. I never had radiation. I was on an infused Chemo along with the oral chemo Temodar. It was a 28 day cycle with the infused on day one and the oral on day 8, repeat again on day 14. It was grueling. I will say my schedule got messed up due to the insurance company not approving Temodar in a timely fashion making me miss my first time. I have been in remission for a little over three years, so I can’t say if missing Temador was detrimental. I wish your father well and know he’s lucky to have great support from his future MD daughter.
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Thank you for your well wishes, @mepowers. I am so happy to hear about your continued remission & wish you the best. Yeah even with GBM patients, I have heard some do not get radiation & instead pursue chemo options such as intra-arterial chemo regimens/pill per day regimens of chemo so I'll be sure to ask his neuro-oncologist all these questions today.
I am curious to hear how they diagnosed your CNS Lymphoma - were the doctors sure it was CNS Lymphoma primarily based on initial MRI scans or was a biopsy/craniotomy required to get tissue samples? We really thought that my dad's lesions could be CNS Lymphoma given his hx of Chronic Lymphocytic Leukemia (CLL), the response/shrinkage in his contrast enhancing lesion after a week of Dexamethasone (prior to surgery), and especially since gliomas and CNS Lymphomas look similar on imaging in immunocompromised patients. However, the path report indicates otherwise - it indicates GBM.