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deblee (@deblee)

Anyone had Proton Beam Therapy for Meningioma?

Brain Tumor | Last Active: May 14, 2020 | Replies (6)

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@xsk8er

I had it four years ago on my tumor which rests on my optic nerve. I had 28 treatments and all I can say is it was non evasive and so far my tumor has not changed and that's the best I can hope for. It is unoperable and it's really my only hope. I had MRI's every 6 months until this year. Now going forward once a year unless there is some change. It has definitely helped me to return to a normal life, will it last for the rest of my life I have no idea. Just grateful to have the chance to move forward with my life for whatever time is possible.

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Replies to "I had it four years ago on my tumor which rests on my optic nerve. I..."

Thank you for that encouraging information. I am happy to hear that your tumor has had not changed since the proton therapy. I am learning towards asking for this treatment for my meningioma.