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Anyone had Proton Beam Therapy for Meningioma?
Brain Tumor | Last Active: Mar 25 10:49pm | Replies (47)Comment receiving replies
I had it four years ago on my tumor which rests on my optic nerve. I had 28 treatments and all I can say is it was non evasive and so far my tumor has not changed and that's the best I can hope for. It is unoperable and it's really my only hope. I had MRI's every 6 months until this year. Now going forward once a year unless there is some change. It has definitely helped me to return to a normal life, will it last for the rest of my life I have no idea. Just grateful to have the chance to move forward with my life for whatever time is possible.
Replies to "I had it four years ago on my tumor which rests on my optic nerve. I..."
Hi,
Thank you for sharing your experience at the time. I'm 54 years old and had a subtotal resection of my meningioma tumor last year. I have been recommended proton beam radiation for the part that could not be removed and is resting on lateral rectus muscle and the optic nerve. I'm confident that radiation will help but have some fear of the side effects. Did you mean to say non-invasive? Did you have damage of other structures in your brain? I have been informed about 40% chance of compromise of my pituitary gland. Were you able to work during your treatment? Thank you so much for your insight, and like you, I work hard to remain strong and active!
Thank you for your post. Mayo also recommended 28 Proton treatments on my cavernous sinus meningioma also. Did you have any cognitive deficits? Pituitary problems? I’m checking with MD Anderson to see if they recommend the same. But I feel confident that Mayo’s program is great. Where did you go for your Proton treatments?
I start treatment next month for four weeks hope all goes well. Woody davis
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Thank you for that encouraging information. I am happy to hear that your tumor has had not changed since the proton therapy. I am learning towards asking for this treatment for my meningioma.