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So sad: Husband has glioma and I feel he is fading away

Brain Tumor | Last Active: May 1 10:38pm | Replies (101)

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@rosez

I thought things couldn't get much worse but just found out that my 39 year old daughter has lymphoma. I feel like I can't take anymore and cry constantly. I have no patience with my husband and feel he is not trying his hardest. We also lost our primary doctor and my husband has been refused 2 doctor appointments because of his temperature caused by the heat. Help

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Replies to "I thought things couldn't get much worse but just found out that my 39 year old..."

Hi @rosez, oh dear. I can understand that you must feel like you just want the world to stop spinning so you can get off of it for a moment. You're being asked to bear a lot right now. What type of lymphoma has your daughter been diagnosed with? Do they know yet? I will connect you with others.

The body is a remarkable thing. It regulates our internal body temperature even when it is hot (or cold) outside. Typically hot weather does not increase a temperature reading. Are you sure that it was the heat that raised your husband's temperature or might he have a light fever? Were the doctor appointments with a potential new PCP?

It is hard to find the patience, especially when all the focus is on the patient. What do you feel that your husband could be trying harder with?

You're not alone, Rose. I'm here. I'm listening without judgement. It's a safe space to say how you feel.

Hello @rosez,

I am so sorry to hear about your daughter's Lymphoma diagnosis. I can certainly understand your feeling of being overwhelmed.

How is your daughter handling this new diagnosis? Is she feeling confident regarding her medical team and future treatment?

Regarding your husband, I can understand your frustration as you perceive that "he is not trying his hardest." It is difficult when we want someone to do everything that they can and they seem to be at a stalemate. Sometimes chronic illnesses cause some people to surrender to their situation rather than take in on and try their best to overcome. Do you think that is where your husband might be right now?

Thoughts and prayers go with you at this time. The caregiving role is a very difficult one, @rosez, don't forget that. You appear to be very dedicated to this task but it does take a lot to "keep on keeping on." Try not to forget that your husband, at some level, realizes all you are doing to help him and he undoubtedly appreciates your caring and concern even if he is not able to express it right now.

Post again, and let me know how you are doing and please take care of yourself during this time. Try and do something for yourself that can be a distraction from the concerns you have. I look forward to hearing from you again.

I'm so sorry to hear about your daughter's new diagnosis. I'm sure it is very hard having to deal with his depression and things and I'm sorry about your doctor. I pray you start having an easier time and find a doctor you both are comfortable with. I know it's hard being away from your daughter and granddaughters especially at a time like this. I am blessed that all of mine are within traveling distances.