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So sad: Husband has glioma and I feel he is fading away

Brain Tumor | Last Active: May 1 10:38pm | Replies (101)

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@rosez

Six weeks of radiation and chemo are now over. He goes on maintenance. Tumor has not grown which the doctors are pleased with. Unfortunately, side effects are here to stay. He shakes, is quiet, never remembers anything, not allowed to drive, etc. This is not what I was expecting and did not know my life would totally change.

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Replies to "Six weeks of radiation and chemo are now over. He goes on maintenance. Tumor has not..."

Hello @rosez Good to hear from you again here! I might imagine your husband is relieved to be done with his most recent radiation and chemo regimen.

Your post helped me recall the tough times in life when my wife would say to me 'this isn't what I expected from life'. I would remind her of a phone conversation she and I had in the early days of our courtship. She was in one city while I was hundreds of miles away in another. We were on the phone, late at night (remember waiting until after 11:00 pm so long distance was the cheapest?), talking about the future when she said to me 'you know, Scott, neither of us knows what the future will hold nor how easy or hard it might be. I know we don't have much of anything right now, but I know I'd rather struggle with you than without you'. I told her I absolutely agreed!

That sentiment never changed for us. I always remembered those words -- that we’d rather struggle together than struggle apart. After we married our life held more than a share of little struggles, significant struggles, and then the monumental struggle of her years with brain cancer. As partners there were struggles where she shouldered the majority of the load, then other times when I did. In each of those times we’d remind each other of that old phone call.

From the day I met my future wife nothing was ever what I had thought it would be. At first I didn’t even think we’d ever marry since we were both engaged at the time, just not to each other. 🙂 I guess I’m trying to say none of us ever know the twists and turns our lives will take or where our paths will lead. Certainly times of caregiving are a prime example of this! I never expected to be my wife’s caregiver at 49 nor did she expect to have to battle for her life as she did.

Wishing I had some magic words to soothe your way, but at least I can send strength, courage, and peace