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So sad: Husband has glioma and I feel he is fading away
Brain Tumor | Last Active: Nov 2, 2020 | Replies (97)Comment receiving replies
My husband is not critically ill. We will not know if radiation worked until mid July. My problem is that I cannot leave him alone as he might confused. If you saw him, you would think he is absolutely fine until you spoke to him for awhile and not understand words he is saying. We both get frustrated and angry because of it and my sisters think I am too hard on him. I wish I could be the person they think I should be but I am not. I cannot go anywhere without him which is very difficult for me.
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Challenging times for you for sure, @rosez During the vast majority of my wife's disease she looked 'normal' too. It made for some very difficult, and ugly, times with others who were sure she should be able to act normal!
I spent a great deal of time trying to explain to people, especially family, that it was the disease, not her, that was in control of her. Some understood, many did not.
Caregiving is one of those things in life that totally and completely change our lives, even though it is our loved one fighting the disease.
Strength, courage, and peace