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So sad: Husband has glioma and I feel he is fading away

Brain Tumor | Last Active: May 1 10:38pm | Replies (101)

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@daughterfuturemd

@rosez I cannot begin to fathom what you are going through nor will I try to, but I too am a caretaker/caregiver for someone diagnosed with GBM and I think we can all agree that it is NOT an easy job and almost always an uphill battle. Caretaking and caregiving, in my opinion, are sometimes just as hard as the battles our loved ones fight because its an unseen and unheard battle. We cannot experience the pain/suffering they are going through but yet we see and feel its repercussions. And at times, it feels as though there's no one there to care for us or ask us how WE are doing. As a medical student and a future physician, I am constantly reminded about the power and importance of self-care because without self-care we cannot care for others. I am not sure if you are a reader, but I personally find strength & hope from books, social media and forums like these. Here are a list of some books that have helped me & hope will help you too:
1. The Caregiver’s Challenge: Living, Loving, Letting Go By Maryann Schacht, Psychotherapist
2. The Fearless Caregiver: How to get the best care for your loved one and still have a life of your own
By Greg Barg
3. The Conscious Caregiver: A mindful approach to caring for your loved one without losing yourself
By Linda Abbit

Please let us know if there are other ways we can support you & each other through these grueling times, and like someone once said to me, "this too shall pass."

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Replies to "@rosez I cannot begin to fathom what you are going through nor will I try to,..."

@daughterfuturemd Such a great message! Could you tell us what one important thing, you learned from these books, that could maybe help others? I’m going to put them on my reading list!

Thank you for recommending the Care Giver. After a few chapters, I already feel better. God bless

Thank you for recommending the Conscious Caregiver. I immediately felt better knowing that my feelings are normal.
The only problem I have is that I cannot hire someone to sit with him as he seems perfectly fine. The problem is that the doctor said that he could have a seizure at anytime and so cannot be left alone. All of our snowbirds have returned home which leaves me with only my sister and I can't keep asking her to stay with him. He finished his last radiation treatment today so I won't have to drive to the hospital anymore. Last week, we stayed at a hotel near the hospital which was sooooo good for both of us.