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DiscussionSo sad: Husband has glioma and I feel he is fading away
Brain Tumor | Last Active: May 1 10:38pm | Replies (101)Comment receiving replies
Replies to "Because of the virus, my family and friends cannot help me. My children all live out..."
Hi again, @rosez You talk about so many important feelings in your posts caused by caregiving! I, too, had no help with my wife so I understand your feelings of isolation and wondering how to carry on all the multitude of required tasks. I'm hoping you have at least a couple neighbors who aren't snowbirds. I find even waving across the yard these days is good for my mental health -- and a smile can go a long way to boost my spirits.
I found it interesting how you said your husband's doc parrots 'you're doing good'. My wife and I heard this at every one of her appointments with her primary care doc that it made both of us uneasy. We'd explain a change, something new happening, etc. and yet we were always 'doing fine'. I don't remember exactly when but one appointment when my wife was explaining a new tremor she was having, the doc saying 'well, you're still doing fine' and my wife looking at me and saying out loud 'Scott, do you think she's as full of bull (deleted) as I do?' It caught me so by surprise I burst out laughing! Not the most gentile way to get the doctor to actually listen, but it did the trick!
If I may ask, how much longer is your husband's course of chemo and radiation set for?
Sending Strength, Courage, and Peace